November 11, 2022
Since the pandemic started, 56% of unpaid caregivers have experienced anxiety or depression (2.5 times the rate of the general population), and caregivers have 10 times the rate of suicidal ideation. And caregiving today, which impacts one in four millennials and one in five Gen Xers, is undermining financial well-being. Caregivers are leaving the workforce, reducing their work hours and not taking promotions, all of which could have long-term economic impacts, disproportionately for women. This section includes ways to support caregivers of elders, adult dependents and children with disabilities, as well as other family health management tools.
Elder and Adult Dependent Care
Even before the pandemic, an aging population, delayed retirements and a shortage of qualified caregivers have resulted in many employees taking on new and additional caregiving responsibilities. Employer support can help employees balance their work and home lives and avoid burnout.
Table 5.1: Benefits to Support Caregivers
BENEFIT | LARGE EMPLOYER BENCHMARK |
---|---|
Caregiver support or navigation tools | 67% |
Implemented a caregiving communication campaign | 37% |
Caregiver Employee Resource/Affinity Group | 44% |
Access to a dedicated care coordinator | 11% |
Digital app/tool to support employees with elder and adult dependent caregiving responsibilities | 45% |
Care coordination/navigation services (e.g., navigating benefits, Medicare, Medicaid, SS) | 38% |
Allowance for disabled dependents older than 26 to be enrolled in employer health plans | 62% |
Elder and/or adult care subsidies | 5% |
Backup adult care | 38% |
Legal benefit that covers health care powers of attorney, living wills, will and trust planning, etc. | 82% |
Long-term care insurance for parents and grandparents | 2% |
BENEFIT | LARGE EMPLOYER BENCHMARK |
---|---|
Second opinion benefits for adult dependents | 32% |
Caregiver leave (beyond unlimited, PTO or sick leave) | 35% |
Bereavement leave | 100% |
Grief counseling/coaching | 60% |
Training for managers and/or peers on supporting grieving employees | 25% |
Palliative care benefits | 15% |
Flexible work hours | 78% |
Flexibility to reduce work hours while maintaining benefits | 34% |
Onsite EAP | 35% |
Telephonic EAP | 96% |
Teletherapy | 88% |
Digital cognitive behavioral therapy programs | 36% |
Children with Disabilities or Unique Needs Care
Globally, approximately 93 million children live with disabilities, and those caring for them face numerous challenges.1 The caregiving responsibilities of these employees often impact work (e.g., passing up promotions, reducing hours) and well-being. The cost of caregiving caused roughly half the 16.8 million Americans caring for children with disabilities to reduce their savings for retirement or other major expenses, like education for other children.2
Table 5.2: Benefits for Caregivers of Children with Disabilities
BENEFIT | LARGE EMPLOYER BENCHMARK |
---|---|
Caregiver Employee Resource/Affinity Group | 52% |
Access to a dedicated care coordinator | 38% |
Navigation support to find specialists for children with disabilities | 52% |
Digital app/tool to support employees with children with disabilities or unique needs | 24% |
Access to specialty practitioners | 46% |
Care coordination/navigation services (e.g., navigating benefits, Medicare, Medicaid, SS, etc.) | 36% |
Allowance for disabled dependents older than 26 to be enrolled in employer health plans | 86% |
Access to diagnostic tools to identify development delays and behavioral health conditions early (e.g., for autism, ADHD, anxiety) | 15% |
BENEFIT | LARGE EMPLOYER BENCHMARK |
---|---|
ABA therapy coverage | 77% |
Mental health support | 81% |
Access to pediatric behavioral health care | 22% |
Backup care | 48% |
Second opinion benefits | 73% |
Caregiver leave (beyond unlimited, PTO and sick leave) | 35% |
Flexible work hours | 78% |
Flexibility to reduce work hours while maintaining benefits | 34% |
Financial planning to set up a special needs trust | 33% |
The Employer Role: Intervention and Inclusion
According to Fidelity Investments, the landscape for families with children with autism is changing. Early intervention is leading to better outcomes for children, and research shows early diagnosis and effective intervention costs are fully offset after 2 years of starting intervention. New savings options, like ABLE accounts and special needs trusts, are bolstering financial security. And inclusive work environments are driving change, such as the 50+ large U.S. employers with autism-specific hiring initiatives. Fidelity suggests that employers foster an inclusive workplace, strengthen the value of their current plan with education and resources for early screening and interventions services, review plan design regularly, and make educational outreach a priority. To learn more, review Fidelity’s Aging out: What does growing old with autism look like?.
The Impact of Caregiving on Work and Well-being
Only one in four employers (27%) in 2021 believe they have programs and policies in place to effectively support employees with caregiving responsibilities, a decrease from two in five in 2020.6
Who's Leaving the Workforce and Why?
One in three caregivers left a job due to unmet caregiving responsibilities, and highly titled, highly paid employees are most likely to leave a company because of work-family conflict.7 What’s more, the costs associated with turnover alone can run as high as 213% of an employee’s salary.8
According to McKinsey’s Women in the Workplace 2020, the following factors are predictive of whether an employee considers downshifting or leaving:
- Lack of flexibility at work;
- Feeling like they need to be available to work at all hours, i.e., “always on”;
- Housework and caregiving burdens due to COVID-19;
- Worry that their performance is being negatively judged because of caregiving responsibilities during the pandemic;
- Discomfort sharing the challenges they are facing with teammates or managers;
- Feeling blindsided by decisions that affect their day-to-day work; and
- Feeling unable to bring their whole selves to work:
- Mothers are more likely than fathers to worry that their performance is being negatively judged,due to their caregiving responsibilities.
- Black women are more likely than women and men overall to feel like they can’t bring their whole selves to work.
Productivity and Career Goals
More than 80% of employees with caregiving responsibilities said it affected their productivity; in contrast, only 24% of employers responded that caregiving influenced workers’ performance.7 Furthermore, 33% of caregivers report that their caregiving responsibilities lead to setbacks in their career or work goals. 9
Time
Caregivers are spending an average of 24 hours per week on caregiving tasks.10 One in five millennial caregivers spend 40 hours per week or more.11
Gender Disparities
Working female caregivers spend, on average, approximately 60% more time caregiving for aging loved ones, compared to their male counterparts, and women are three times more likely to retire earlier than expected to become a caregiver.15
Well-being and Mental Health
Caregivers are twice as likely to develop chronic illness and 49% experience exhaustion, 27% stress on marriage/relationship and 60% are overwhelmed by financial stress.12,13,14 Furthermore, caregiving takes a toll on mental health, with 70% of caregivers reporting adverse mental health symptoms—55% reported anxiety or depression, 32% reported passive or serious suicidal thoughts. The effects are even worse for sandwich caregivers, those caring for people under and over 18, with 52% reporting serious suicidal thoughts, 12 times the rate of nonparents/noncaregivers.14
Racial Disparities
Latinx families are significantly more likely to take care of a loved one than Black or White families. Black and Latinx caregivers are in high-intensity care situations more often than either White or Asian caregivers. During the pandemic, Black and Latinx families experienced a greater increase in time spent on care than White families.15
Income Disparities
Caregivers with higher incomes report significantly higher levels of health. Those with lower incomes are in high-intensity situations more often, provide greater hours of care weekly and feel less supported by their employers.16
Merck's Caregiving Success
When Merck implemented a comprehensive caregiving solution, they found that 88% of those who used the benefit reported better engagement and less stress at work, 65% reduced missed meetings and workdays, and 60% saved more than 10 hours of time.
Serious Conditions and Other Family Health Management Concerns
Working parents and caregivers, especially women, often have the second shift of managing their family’s health and well-being, from the daily nutrition, routine physical exams and immunizations to serious, and sometimes life-threatening, chronic condition management.
Table 5.3: Benefits for Family with Serious Conditions and Other Family Health Management
BENEFIT | LARGE EMPLOYER BENCHMARK |
---|---|
Medical decision support/second opinion services | 73% |
Employee advocacy tools/services for claims assistance (e.g., bill play, claims resolution) | 79% |
High-tough health concierge services (e.g., full-service program that helps employees navigate the health care system) | 58% |
Steerage to high-quality care for: | |
Bariatric Surgery | 58% |
Cancer | 53% |
Cardiovascular/cardiac | 32% |
COVID-19 long-hauler | 5% |
Kidney disease | 17% |
Mental health and emotional well-being | 28% |
Musculoskeletal conditions/procedures | 64% |
Substance use disorder | 34% |
Transgender health | 11% |
Centers of Excellence (COE) | |
Bariatric surgery | 69% |
Cancer | 50% |
Cardiovascular/cardiac | 46% |
Long COVID | 9% |
Mental health | 32% |
BENEFIT | LARGE EMPLOYER BENCHMARK |
---|---|
Musculoskeletal conditions/procedures | 47% |
Substance use disorder | 34% |
Transgender health | 27% |
Transplants | 72% |
Travel to and from COEs paid for employees and family members | 49% |
Lodging paid for employees and families during treatments at COEs | 43% |
Emergency relief fund | 36% |
COVID vaccination education | 70% |
COVID vaccines available to employees and family members through employer | 21% |
Other vaccination education | 43% |
Mental health supports (e.g., EAPs, virtual mental health services) available to dependents under 18 | 91% |
Access to providers with pediatric mental health expertise at no or low cost | 32% |
On-site or near-site clinic available to dependents (including children) | 17% |
Obesity screenings, treatments and visits with dietitians for children/adolescents | 49% |
Financial incentives for spouses/partners for health and well-being | 45% |
Recommended Business Actions to Support Childhood Vaccinations
According to a World Health Organization (WHO) survey, more than a third of responding countries report disruptions in their routine immunization services due to the COVID-19 pandemic.16 Employers have an essential role to play in supporting working parents and reducing barriers to getting eligible children and dependents vaccinated. Here are recommended practices from the Health Action Alliance and American Academy of Pediatrics:
- Offer paid time off or flexible scheduling
- Help schedule vaccine appointments or provide access to vaccines for eligible children and dependents (e.g., free or discounted childcare while parents with multiple children attend vaccine appointments, transportation benefits)
- Reinforce (and make sure) COVID-19 vaccines are free for employees and their families
- Plan an on-site COVID-19 vaccine clinic open to all employees and their families
- Offer modest incentives to encourage working parents to vaccinate eligible children
Learn more about recommended actions, key messages and sample communications by exploring Resources to Help You Take Action: Business Action on Childhood Vaccinations and the Business Group’s National Immunization Awareness Month: Addressing Gaps in Child Immunizations blog.
Taking on the Obesity Epidemic
New data and research are upending traditional thinking about weight and weight loss and informing new ways to address the escalating obesity epidemic. Whether obesity affects an employee or a family member, it can take a toll on their well-being. For employers seeking to align their weight management strategy with the latest evidence, the Business Group’s Practical Playbook: Managing Overweight & Obesity offers recommendations for creating a comprehensive benefits package to treat obesity, including behavior-based interventions and pharmacological and surgical treatment.
Meeting the Mental Health Needs of Kids and Teens
Seventy-one percent of parents believe the pandemic has taken a toll on their child’s mental health, increasing the time, stress and energy they spend on caregiving.17
According to the World Health Organization (WHO), half of all mental health conditions start before age 14, but unfortunately, most cases are undetected and untreated.18 Employers can support employees and their children by expanding provider networks, promoting easier access to virtual care and helping parents navigate the complex care system.
Below are specific employer recommendations:
- Where possible, make mental health supports, such as EAPs and virtual mental health services, available to kids under 18 through health plans or standalone providers. Services that can be provided through text can be a good way to increase utilization by younger people.
- Consider reducing or eliminating cost-sharing for mental health services, or specifically for pediatric mental health.
- Push health plans to audit their mental health provider networks for pediatric mental health expertise. One large employer found that several of its in-network mental health providers actually had the ability to treat kids/adolescents but weren’t tagged as such in their provider directory.
- Consider emerging vendors focused on kids’ mental health.
- Communicate, communicate, communicate to employees about child and adolescent mental health and what benefits are available to support them.
- Support parents and caregivers which can have a positive trickle-down effect on kids, because parents will then have more capacity to take care of their dependents without getting burned out in the office and at home.
To learn more, watch Nurturing Young Minds: Employer Support for the Mental Health Needs of Kids and Teens from the Business Group’s Mental Health Summit.
- 1 | UNICEF USA. Children with disabilities. 2021. https://www.unicefusa.org/mission/protect/disabilities. Accessed July 21, 2021.
- 2 | Craver J. How can employers help children with special needs? Benefits Pro. January 9, 2017. https://www.benefitspro.com/2017/01/09/how-can-employers-help-children-with-special-needs/?slreturn=20210702131803. Accessed July 21, 2021.
- 3 |University of Pennsylvania School of Medicine. High quality early intervention for children with autism quickly results in costs saving. ScienceDaily. August 8, 2017. www.sciencedaily.com/releases/2017/08/170808074253.htm. Accessed July 21, 2021.
- 4 | Fidelity Investments. Aging out: What does growing old with autism look like? 2021. https://sponsor.fidelity.com/bin-public/06_PSW_Website/documents/AgingOut_finals.pdf. Accessed July 21, 2021.
- 5 | Scheiner M. Corporate neurodiversity hiring programs: Scratching the surface?”. Autism Spectrum News. January 1, 2020. https://autismspectrumnews.org/corporate-neurodiversity-hiring-programs-scratching-the-surface/. Accessed July 21, 2021.
- 6 | Willis Towers Watson. 2021 emerging from the pandemic survey. February 24, 2021. https://www.willistowerswatson.com/en-US/Insights/2021/02/2021-emerging-from-the-pandemic-survey. Accessed August 9, 2021.
- 7 | Fuller JB, Raman M. The caring company. Harvard Business School. January 27, 2019. https://www.hbs.edu/managing-thefuture-of-work/Documents/The_Caring_Company.pdf. Accessed August 5, 2021.
- 8 | TIME’S UP. Care economy business council. 2021. https://timesupnow.org/care-economy-business-council/. Accessed August 5, 2021.
- 9 | Fidelity Investments. 2021 American caregivers study. 2021. https://s2.q4cdn.com/997146844/files/doc_news/2021/06/08/Fidelity-Caregivers-Study-Fact-Sheet-2021_final.pdf. Accessed August 9, 2021.
- 10 | AARP. Caregiving in the U.S. May 2020. https://www.caregiving.org/wp-content/uploads/2020/06/AARP1316_RPT_CaregivingintheUS_WEB.pdf. Accessed August 5, 2021.
- 11 | New York Life. Caregiving and COVID-19. 2020. https://www.newyorklife.com/assets/newsroom/docs/pdfs/New_York_Life_Sandwich_Gen_White_Paper.pdf. Accessed August 5, 2021.
- 12 | Ho A, Collins SR, Davis K, Doty MM. A look at working-age caregivers' roles, health concerns, and need for support. Commonwealth Fund Issue Brief. 2005 Aug;(854):1-12.
- 13 | Unum. Adult caregiving: Generational considerations for America’s workforce. June 2018. https://www.unum.com/caringreport. Accessed August 6, 2021.
- 14 | UFidelity Investments. Fidelity® study: More than three-quarters of caregivers report financial, social, mental or professional setbacks. May 27, 2021. https://newsroom.fidelity.com/press-releases/news-details/2021/Fidelity-Study-More-Than-Three-Quarters-of-Caregivers-Report-Financial-Social-Mental-or-Professional-Setbacks/default.aspx. Accessed August 5, 2021.
- 15 | Business Group on Health and Wellthy. Diversity, inclusion & caregiving: A case study with Merck webinar. June 17, 2021. https://www.businessgrouphealth.org/get-involved/events/diversity-inclusion-and-caregiving-a-case-study-with-merck. Accessed July 8, 2021.
- 16 | World Health Organization. COVID-19 continues to disrupt essential health services in 90% of countries. World Health Organization. April 23, 2021. https://www.who.int/news/item/23-04-2021-covid-19-continues-to-disrupt-essential-health-servicesin-90-of-countries. Accessed August 05, 2021.
- 17 | Children’s Hospital of Chicago. Children’s mental health during the COVID-19 pandemic. May 27, 2021. https://www.luriechildrens.org/en/blog/childrens-mental-health-pandemic-statistics/. Accessed July 30, 2021.
- 18 | World Health Organization. Adolescent mental health. September 28, 2020. https://www.who.int/news-room/fact-sheets/detail/adolescent-mental-health. Accessed August 05, 2021.
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Full GuideThe Family Benefits Bundle: Full Guide
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Part 1The Family Benefits Bundle: Introduction
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Part 2The Family Benefits Bundle: Family Building
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Part 3The Family Benefits Bundle: Family Transitions
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Part 4The Family Benefits Bundle: Parenting and Childcare
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Part 5The Family Benefits Bundle: Caregiving
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